Programs & Resources

Our goal is to reach every family in our area who has a child with Down syndrome and provide programs that are meaningful to all. 

We visit families in the hospital and provide whatever support they need.

Angels Among Us – Family Visits

We provide new parent tote bags to parents who give birth or adopt children with Down syndrome.

These bags include several books on raising a child with Down syndrome, resources, and some special gifts. Our new parent kits are valued around $100-125.

Babies with Down syndrome can have medical challenges, like heart defects, intestinal, respiratory problems, developmental delays, hearing/vision impairments. All of this is overwhelming to a new parent – and that is the time where we step in to help.

Our visits offer hope and empowerment and we let the family know we support them in the days and years ahead.

Educational Advocacy – Our goal is to give children with Down syndrome the most inclusive education possible so that they may grow up to fulfill their dreams and become self-advocates.

  • We provide payment for educational advocacy for families through Susan Marks & Advocates.

  • Families come to us when they are no longer able to rectify a school situation in which their child is not being fully included in the Least Restrictive Environment (LRE).

Social Outreach – Annual Events – Our goal is to provide support across the lifespan and have people view Down syndrome with a new, more forward thinking perspective without the old limitations and stigmas.

  • Sharing Walks have been happening for more than 20 years and each year, the celebration focuses on community members who are making a difference, families who love their journeys (even during some tough times) and organizations committed to helping people with Down syndrome through their activities, funding and sponsorship.

  • We also host Christmas parties and celebrate World Down Syndrome Day at a special water tower lighting in downtown Gilbert.

  • We produce a monthly newsletter (in English and Spanish) with information, activities and resources helpful to our families.

  • We also make regular visits to Arizona State University (ASU) and the Mayo Clinic to have our self advocates with Down syndrome speak about their lives with Down syndrome.  These discussions have been described as ‘life changing’.

Therapeutic Recreation 
Be sure to check out your local city’s Parks and Recreation websites for Therapeutic Recreation.
Chandler Parks & Recreation offers social programs throughout the year and summer camps.  
Mesa Parks & Recreation has adaptive sports, recreation and social programs for youth and adults with intellectual disabilities. Similar programs can also be found in Gilbert, Tempe, Scottsdale, Phoenix and surrounding cities.
If you live in the West Valley, check out the Peoria Recreation Program and the City of Surprise Therapeutic Program

Special Olympics Arizona has a variety of adapted recreation opportunities across the state.  To view their website, go to https://specialolympicsarizona.org.

Online classes and support

Raising Special Kids offers may classes and webinars on topics such as behavior support, financial planning, IEP training, and much more.  Be sure to check out their website to learn about important classes and information sessions that may help you.  To visit their website, please go to https://raisingspecialkids.org. Follow them on social media and sign up for their newsletters.

 

Additional Resources

Arizona Early Intervention Program (under 3)

After you become the parent of a child with Down syndrome, you may wonder, ‘What do I do first?’

A good place to start is with the AzEIP. You can call them at 602-635-9799. 

This program is under the Arizona Division of Developmental Disabilities Program. AzIEP covers all children who have disabilities from birth to 2 years and 10.5 months of age. By law, this program is here to help you obtain therapies for your child, including Speech, Occupational and Physical. These are home-based services.

 

Please note: For Children Over 3:
Contact the Division of Developmental Disabilities (DDD)
Phone: (602) 246-0546 

 

 

Arizona Health Care Cost Containment System (AHCCCS)
Provider List
Social Security Disability Information
Educational Advocates
Legal Assistance
National Down Syndrome Congress
The Global Down Syndrome Foundation
TASH (The Association for the Severely Handicapped)
Food Banks
Multiple Services, including emergency shelter
Reece's Rainbow - International Adoption for Down Syndrome
National Down Syndrome Adoption Network

We Need Your Support!

Sharing Down Syndrome Arizona is a 501(c)3 nonprofit organization and all contributions are tax-deductible to the full extent of the law. EIN: 86-0822557. Our Arizona State Tax Qualifying Charitable Organization (QCO) Code is: 20543