About Down Syndrome

Down Syndrome is the most common genetic birth anomaly occurring 1 in approximately every 691 births. Babies with Down syndrome can have medical challenges, nearly 50% have heart defects, intestinal and respiratory problems. They often have developmental delays, hearing and vision impairments and have mild to moderate intellectual disabilities.

However, with proper medical attention, therapies and family and community support, the future of people with Down syndrome in the United States has dramatically improved over the last decades. 

As Gina Johnson (Founder & Director) tells most parents she meets, “Children with Down syndrome are some of the sweetest babies on the face of the earth; they bring goodness to our world as they teach us about true, unconditional love.” 

Our Mission

We champion and celebrate ALL people who have Down syndrome throughout the lifespan. We support families in their care and advocacy efforts for the people in their lives with Down syndrome.