Welcome to Sharing Down Syndrome AZ

Welcome to the Sharing Down Syndrome Arizona Official Website!

We champion and celebrate ALL people who have Down syndrome throughout the lifespan. We support families in their care and advocacy efforts for the people in their lives with Down syndrome.

About Down Syndrome

Down Syndrome is the most common genetic birth anomaly occurring 1 in approximately every 691 births. Babies with Down syndrome can have medical challenges, nearly 50% have heart defects, intestinal and respiratory problems. They often have developmental delays, hearing and vision impairments and have mild to moderate intellectual disabilities.

However, with proper medical attention, therapies and family and community support, the future of people with Down syndrome in the United States has dramatically improved over the last decades. 

As Gina Johnson (Founder & Director) tells most parents she meets, “Children with Down syndrome are some of the sweetest babies on the face of the earth; they bring goodness to our world as they teach us about true, unconditional love.” 

Our Mission

We champion and celebrate ALL people who have Down syndrome throughout the lifespan. We support families in their care and advocacy efforts for the people in their lives with Down syndrome.


K. Book

Sharing Down Syndrome has been so great to my family! We had a nice in home visit after my daughter was born and came home from the NICU.
We were also able to enjoy the Sharing Down syndrome Christmas event in 2019 when my daughter was young. We really enjoy the events and the care that goes into planning them. We can’t wait to partake in more events in the future.
We are super thankful to be part of the sharing Down syndrome community! Thanks for all you do for our community!

L. Ferron

We have attended xmas parties and walks and our sons LOVES it all. Sharing Down Syndrome AZ makes us feel like we are not alone and makes sure our kids get the inclusion they deserve, along with making sure they get the services they also deserve. Thanks for all you do Sharing Down Syndrome of AZ, we love you!!


Christmas Party in the Park

Dec. 3, 2022 2-4pm

Ruben Romero Event Space at

Tempe Kiwanis Park

World Down Syndrome Day 2023

Tentative Date is March 18, 2023

from 6:30pm-7:30pm

Gilbert Water Tower Plaza

Sharing Walk for Down Syndrome

April 22, 2023 from 8:30am-12pm

Tempe Diablo Stadium 

Go to the Sharing Walk drop down menu to learn more about the event and to make a team.

See the professional photos from our 22nd Sharing Walk by Save This Memory Photography and Videography

Our Supporters

Thank You To All Of Our Supporters

Diamond Sponsors
Blacker Orthodontics
The Colten Cowell Foundation
Providence Homes
The Saguaros (formerly The Scottsdale 20/30 Club)
Platinum Sponsors
The Global Down Syndrome Foundation
Earnhardt Automotive Employees
Kerr Endodontics
Albertsons, Safeway and Vons – Southwest Division
Gold Sponsors:
Farnsworth Ricks Management & Realty
Phelps LeClair Estate Law
All Aboard Services
Johnson-Larsen Family Dentistry
Silver Sponsors
Paul Kelly Maxillofacial
The Tempe Diablos
Valle Luna Mexican Food & Cantinas 
Save This Memory Photography & Videography
Integrate (Software company)
Salt River Project Employees
Usborne Books – Jackie Killourie
Vindicor Pest Services
Sassy’s Cafe & Bakery
Bronze Sponsors
MC Sharing the Good Life Foundation
Arizona for Better Medicaid
Milestone Pediatrics
Endeavor HCBS
Aloha Desert Pools
Best Trophies and Awards 
Basha’s Supermarkets
Friends of Sharing 
Hospice of the Valley (Dementia Care)
AZ Dept of Economic Security – Department of Developmental Disabilities
TheraCare Pediatric Services
Ballet of Arizona – Adaptive Dance program
Susan Marks & Advocates
Chroma CuteTees
Raising Special Kids
Sharing Down Syndrome AZ – Spanish Chapter
Arizona State University Sensorimotor Research Lab



Sharing Down Syndrome Arizona is a 501(c)3 nonprofit organization and all contributions are tax-deductible to the full extent of the law. EIN: 86-0822557. Our Arizona State Tax Qualifying Charitable Organization (QCO) Code is: 20543


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