Welcome to Sharing Down Syndrome AZ

Welcome to the Sharing Down Syndrome Arizona Official Website!

We champion and celebrate ALL people who have Down syndrome throughout the lifespan. We support families in their care and advocacy efforts for the people in their lives with Down syndrome.

About Down Syndrome

Down Syndrome is the most common genetic birth condition occurring 1 in approximately every 691 births. The unique triplication of the 21st chromosome can cause babies born with Down syndrome to have some medical challenges.  Down syndrome comes in three forms and can differentiate the structure of the chromosomes.  Some are born with Mosaic or Translocation forms of Down syndrome.  

However, with proper medical attention, therapies and family and community support, the future of people with Down syndrome in the United States has dramatically improved over the last decades. 

As Gina Johnson (Founder & Director) tells most parents she meets, “Children with Down syndrome are some of the sweetest babies on the face of the earth; they bring goodness to our world as they teach us about true, unconditional love.” 

Our Mission

We champion and celebrate ALL people who have Down syndrome throughout the lifespan. We support families in their care and advocacy efforts for the people in their lives with Down syndrome.


K. Book

Sharing Down Syndrome has been so great to my family! We had a nice in home visit after my daughter was born and came home from the NICU.
We were also able to enjoy the Sharing Down syndrome Christmas event in 2019 when my daughter was young. We really enjoy the events and the care that goes into planning them. We can’t wait to partake in more events in the future.
We are super thankful to be part of the sharing Down syndrome community! Thanks for all you do for our community!

L. Ferron

We have attended xmas parties and walks and our sons LOVES it all. Sharing Down Syndrome AZ makes us feel like we are not alone and makes sure our kids get the inclusion they deserve, along with making sure they get the services they also deserve. Thanks for all you do Sharing Down Syndrome of AZ, we love you!!


Christmas Party in the Park

Our party was held on Dec. 3, 2022 2-4pm

at Ruben Romero Event Space at

Tempe Kiwanis Park

Here is a link to our photos

Christmas Party Photos




World Down Syndrome Day 2023


March 18, 2023


Gilbert Water Tower Plaza

45 W Page Ave, Gilbert, AZ  85233






Sharing Walk for Down Syndrome

April 22, 2023 from 8:30am-12pm


Tempe Diablo Stadium 

2200 W Alameda Dr, Tempe, AZ 85282




Go to the Sharing Walk drop down menu to learn more about the event, become a sponsor, and to make a fundraising team.

See the professional photos from our 23rd Sharing Walk by Save This Memory Photography and Videography

Our Supporters

Sharing Down Syndrome Arizona is a 501(c)3 nonprofit organization and all contributions are tax-deductible to the full extent of the law. EIN: 86-0822557.

Our Arizona State Tax Qualifying Charitable Organization and our QCO Code is 20543.</p.Sharing Down Syndrome Arizona is a registered Amazon Smile Charity and part of the Fry's Community Rewards Program.

Receive a dollar-for-dollar tax credit when you to direct a portion of your state tax dollars to support Sharing Down Syndrome Arizona.  This incentive is at no cost to you. 1. Donate up to $800 (up to $400 if filing single) to Sharing Down Syndrome AZ and receive a credit on your taxes for the full amount of your donation.

2. Provide your donation receipt and our QCO code 20543 to your tax preparer.

**For more information on the AZ Charitable Giving Tax Credit visit AZDOR.gov.

Sustainability – Organizational Initiatives for 2022 and Beyond

As a small not for profit, we understand we have a role to play in being less wasteful and concerned about our environmental impact.

How A Child with Down Syndrome Can Qualify For Social Security Disability

If you’re a parent whose child was born with Down Syndrome you’re not alone. There are almost 6,000 children born with Down Syndrome every year in the U.S. If you are having a tough time paying for your child’s medical care and living expenses because you had to take time off work to take care of them, you can apply for Supplemental Security Income (SSI) from the Social Security Administration (SSA).

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