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sharingdsarizona

Back in the office ❤️ Between summer vacations

Back in the office ❤️
Between summer vacations and family visiting, it’s been a while since all of our team members were together in the office at the same time.
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We are putting out our August newsletter soon and it will have much information on activities for your children and loved ones with DS.
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Wishing everyone a wonderful day and great back to school adventure 😘.

We love the speech @chrisnikic gave at the @theesp

We love the speech @chrisnikic gave at the @theespys - way to go on your Ironman accomplishment! We will be watching you and cheering you on always from Arizona!
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#ironman2021 #chrisnikic #ironmanhawaii #espysawards #espys2021 #downsyndromeawareness

Enjoy your 4th of July, everyone! We wish all of o

Enjoy your 4th of July, everyone!
We wish all of our families a safe and happy Independence Day. The Sharing office will be closed on July 5 in honor of the holiday.

Sleep Study - Participants Needed; Earn $140 each

Sleep Study - Participants Needed; Earn $140 each visit

The University of Arizona (Tucson) is seeking participants for a clinical trial of medications to treat obstructive sleep apnea in children age 6-17 with Down syndrome.

The clinical trial will involve completing a total of 3 sleep studies over 3 months and taking study medications for a total of 2 months.

Children may be eligible if they have a diagnosis of Down syndrome (trisomy 21, but not translocation or mosaicism) and do not have any of the following:
-currently using and unable to discontinue PAP therapy
-premature birth < 37 weeks estimated gestational age
-seizure disorder requiring current use of medications
-untreated or inadequately treated hypothyroidism
-history of current, untreated depression
-history of liver disease

The study reimburses $140 for each visit, and visits are tied to a sleep study, so participants wouldn't need to worry about a hotel as they would be staying in the sleep lab.

Email slopez1@arizona.edu for more information.

Flag Football Camp Starting this Fall Are you rea

Flag Football Camp Starting this Fall

Are you ready for some football?!

If so, be sure to sign up your child (ages 6-14) for a Flag Football Camp planned to start this September 24. The camp will run for 8 weeks, culminating in a game happening on the last week of camp.

The League is called The AZ Premier Flag Football.

The cost to participate is $25 and each player will get a t-shirt, flags and ball. (If any player needs financial assistance to pay this fee, please email angie@sharingds.org.)

Practice will be on Friday nights at 6pm at the Red Mountain Soccer Complex in Northeast Mesa. (Exact practice times subject to change).

To learn more or sign up a player, contact Lynn Ferron 480-440-1285, ferrons1@yahoo.com.

In addition: please contact Lynn if you are interested in coaching and/or volunteering to work with the players on drills.

This will be a terrific opportunity for people and families who love sports and people with Down syndrome.

Touchdown!

Our July newsletter was emailed to our Proud Paren

Our July newsletter was emailed to our Proud Parents today.
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Be sure to check it out, in English and Spanish versions.

To receive our newsletter and join our mailing list, email jennie@sharingds.org.

Looking for a fun way to beat the Arizona summer h

Looking for a fun way to beat the Arizona summer heat?
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Then visit our friends at @fatcatsgilbert @fatcats_mesa and their newest location @fatcatsqueencreek - these fun centers are family friendly and offer a luxury, first-run movie theater with all reclining seats, 20 lanes of bowling, a miniature glow-in-the-dark golf course and a huge arcade with over 50 games!
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Have dinner or lunch there, too, and make sure you check out their special movie rates on Tuesdays.
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Pictured are some of the staff from Fat Cats Gilbert visiting us at the Sharing office recently.
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#fatcatsgilbert #fatcatsmesa #fatcatsqueencreek #familyfuncenterbound #beattheheatofsummer☀️🌴

We are so grateful for being selected as a grant r

We are so grateful for being selected as a grant recipient this year from the wonderful @scottsdale2030 Club.
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The funds given will help us to provide services and support to individuals with Down syndrome and their families in Arizona from birth to adulthood.

We are bigs fans of @dbook and the @suns! . . #r

We are bigs fans of @dbook and the @suns!

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#rallythevalley #phoenixsunsbasketball @sunscommunity #nbaplayoffs2021

Our June 2021 newsletter was emailed to our Sharin

Our June 2021 newsletter was emailed to our Sharing families today in English and Spanish.
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To sign up for our newsletters, email jennie@sharingds.org.
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You can view our newsletter on our Facebook and Twitter channels.
Have a safe and wonderful summer, everyone.⛱⛱

A free, fun virtual magic camp is being held this

A free, fun virtual magic camp is being held this summer - contact the @uabartsinmed at 205-996-1488 or email laurenme@uab.edu.
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#virtualsummercamp #summercamp2021 #magiccamp #magiccamps #onlinecampsforkids #onlinecampsforteens #onlinecamps2021

Tonight’s the night! 👏👏 We are pleased to

Tonight’s the night!
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We are pleased to invite you to tonight’s finale of our Spring 2021 online parent forum series.
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Dr. David Bank with @spgvirtualcare will speak tonight on home and virtual health care and how this could really benefit our families.
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It’s not too late to register- email jennie@sharingds.org.
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If you forget to register but want to join our zoom call at 7 pm, use this to join: Meting ID: 822 0199 8087; the passcode is 287384
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We are hosting our last online parent forum for Sp

We are hosting our last online parent forum for Spring 2021 tomorrow night (May 13) from 7-8:15 pm.
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We will be spotlighting the work of SPG Virtual Care - a group of physicians and medical professionals who bring healthcare to families who may be better served at home or virtually.
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We will host Dr. David Bank who is the leader of Pediatric Healthcare with SPG Virtual Care.
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Dr. Bank will present information and then have a time for participants to ask questions.

To register for this event, email jennie@sharingds.org.

Photo courtesy of SPG-Virtual Care.

@spgvirtualcare #homehealthcareproviders #homehealthagency #homehealthcareservice #homehealthcareconsultants

Tomorrow night my son David (one of the original B

Tomorrow night my son David (one of the original Backstreet Boys) is going to Prom. Can you guess which one he is? 😂 You parents of younger children won’t believe the incredible journey ahead. Life is good! ❤️ Love you all! Love, Gina aka “David’s Mom”

Reminder: Today, May 4, 2021 at 2 pm, there will

Reminder:
Today, May 4, 2021 at 2 pm, there will be a webinar entitled, 'Caring for People with Down syndrome and Dementia.'

The presenters will be Dr. David Coon and Phil Carl from Arizona State University's College of Nursing and Health Innovation.
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If you are unable to participate today, there will be another webinar on the same topic happening May 12. Here are those details:

When: May 12, 2021 10:00 AM (Arizona Time)
Topic: My Webinar - Caring for Individuals with Down Syndrome and Dementia
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Register in advance for this webinar. See our Facebook post today for links or email angie@sharingds.org for help.

@azddpc @asunursingandhealth #dementiaawareness💜 #dementiaanddownsyndrome

Our 22nd Sharing Walk Rescheduled for April 23, 20

Our 22nd Sharing Walk Rescheduled for April 23, 2022 -
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We are moving our Sharing Walk from Sept. 25, 2021 to April 23, 2022.
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This decision comes as a result of your feedback on having the event in April versus September due to the heat, the uncertainties of mass gatherings during a pandemic, and the delays in fundraising and planning due to these uncertainties.
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We considered scaling down the walk, or making some adjustments like in 2020, but we would rather give the best experience we can offer a few months later in April.
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So, get ready to fundraise, walk, stroll and have a great time at our 22nd Sharing Walk now happening April 23, 2022 at Tempe Diablo Stadium.
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#sharingwalk #sharingwalkfordownsyndrome #sharingwalk2022
#walkfordownsyndrome

Our May 2021 newsletter was just emailed to our Pr

Our May 2021 newsletter was just emailed to our Proud Parents and supporters.
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To view the newsletter, please visit our Facebook or Twitter channels and click on the links provided.
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To sign up to receive our newsletters, email jennie@sharingds.org.

@ar_inclusion @higheroctavehealing @azddpc @asunursingandhealth

There's an excellent opportunity happening on Tues

There's an excellent opportunity happening on Tuesday, May 4, 2021 from 2-3:30 pm (Arizona time) planned by the Arizona Developmental Disabilities Planning Council.
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Speakers from the ASU Edson College of Nursing and Health Innovation will participate in a webinar entitled, 'Caring for People with Down syndrome and Dementia.'
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Many adults with Down syndrome are at a higher risk of having dementia as they age. This webinar will help enlighten and inform those managing the care for their loved ones.
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Visit the Arizona Developmental Disabilities Planning Council website page to learn more or see our post on Facebook today with a link to register.
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@asunursingandhealth @azddpc
#asunursing #asunursingandhealth #asunursingprogram #asunursingschool #arizonadevelopmentalservices #developmentaldisabilitiesservices #downsyndrome #dementiaanddownsyndrome #dementiaawareness💜

Our April online parent forum is tonight, April 22

Our April online parent forum is tonight, April 22, starting at 7pm. It will be done via Zoom.
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Email jennie@sharingds.org to register or to learn more, send questions.

Meeting ID: 810 6062 7480
Passcode: 507515

Last night I was able to spend time with my belove

Last night I was able to spend time with my beloved friend, Jenny White, who is a gifted artist and self-advocate who has Down syndrome . She is truly one of the greatest people I know. I met her about 30 years ago and what a gift she is! As is her mother, Midge White. ❤️

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