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sharingdsarizona

We enjoyed our "Lunch and Learn" last week with ou

We enjoyed our "Lunch and Learn" last week with our friends at @desertfinancial Credit Union.

Thank you for the opportunity to meet your team and have our ambassadors share their experiences.

Meet Tori - Tori will be featured on the JumboTron

Meet Tori - Tori will be featured on the JumboTrons in Times Square this Friday for #downsyndromeawarenessmonth 💛💙

Photo courtesy of Mary Thompson.

Meet Tamia and Sam❤️ Two more beautiful faces

Meet Tamia and Sam❤️
Two more beautiful faces we will see featured in the Jumbotron in Times Square NY this Friday to kick off Down syndrome awareness month.

Photo courtesy of ABC15 News.
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#downsyndromeawarenessmonth #downsyndromeawareness #downsyndromecommunity
@notyourordinarysam

Start spreading the news! Mesa resident Sean B.,

Start spreading the news!

Mesa resident Sean B., will make an appearance in Times Square!

His photo will be shown on two JumboTron screens in the heart of Times Square, thanks to the support of @clearchanneloutdoor.

The presentation will be live-streamed on the National Down Syndrome Society’s Facebook page from 9:30-10:30am ET on September 18.

From the @ndssorg - "The one-hour video of roughly 500 photographs includes children, teens and adults with Down syndrome from all 50 states. These collective images promote the value, acceptance and inclusion of people with Down syndrome in a very visible way."

Congrats, Sean! We will be watching for you!

@timessquarenyc #downsyndromeawarenessmonth
@abc15arizona @arizonasfamily @12newsaz @fox10phoenix

Our September newsletter was emailed to our Proud

Our September newsletter was emailed to our Proud Parents today in English and Spanish.
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To view the newsletter, visit our Facebook or Twitter channels for links.
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A link to our Facebook channel is on our Instagram bio.
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To sign up for our newsletters, email jennie@sharingds.org.
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#downsyndromeawareness #downsyndromeaz #sharingdownsyndrome #sharingdownsyndromearizona #sharingdownsyndromearizona

We have heard the chocolate pastries are unbelieva

We have heard the chocolate pastries are unbelievably tasty 😋
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@wgnbreadco @parkerspastries_az #wholegrainnaturalbreadcompany #wholegrainnaturalbread #parkerspastries

Our August newsletter was emailed to our Proud Par

Our August newsletter was emailed to our Proud Parents today.
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Be sure to check out our news and happenings during this Back-to-School season.
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A link to our newsletter may be found on our Facebook and Twitter channels.
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To receive our newsletters, email jennie@sharingds.org.
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Articles from the newsletter will be updated on our website blog tomorrow.

Back in the office ❤️ Between summer vacations

Back in the office ❤️
Between summer vacations and family visiting, it’s been a while since all of our team members were together in the office at the same time.
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We are putting out our August newsletter soon and it will have much information on activities for your children and loved ones with DS.
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Wishing everyone a wonderful day and great back to school adventure 😘.

We love the speech @chrisnikic gave at the @theesp

We love the speech @chrisnikic gave at the @theespys - way to go on your Ironman accomplishment! We will be watching you and cheering you on always from Arizona!
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#ironman2021 #chrisnikic #ironmanhawaii #espysawards #espys2021 #downsyndromeawareness

Enjoy your 4th of July, everyone! We wish all of o

Enjoy your 4th of July, everyone!
We wish all of our families a safe and happy Independence Day. The Sharing office will be closed on July 5 in honor of the holiday.

Sleep Study - Participants Needed; Earn $140 each

Sleep Study - Participants Needed; Earn $140 each visit

The University of Arizona (Tucson) is seeking participants for a clinical trial of medications to treat obstructive sleep apnea in children age 6-17 with Down syndrome.

The clinical trial will involve completing a total of 3 sleep studies over 3 months and taking study medications for a total of 2 months.

Children may be eligible if they have a diagnosis of Down syndrome (trisomy 21, but not translocation or mosaicism) and do not have any of the following:
-currently using and unable to discontinue PAP therapy
-premature birth < 37 weeks estimated gestational age
-seizure disorder requiring current use of medications
-untreated or inadequately treated hypothyroidism
-history of current, untreated depression
-history of liver disease

The study reimburses $140 for each visit, and visits are tied to a sleep study, so participants wouldn't need to worry about a hotel as they would be staying in the sleep lab.

Email slopez1@arizona.edu for more information.

Flag Football Camp Starting this Fall Are you rea

Flag Football Camp Starting this Fall

Are you ready for some football?!

If so, be sure to sign up your child (ages 6-14) for a Flag Football Camp planned to start this September 24. The camp will run for 8 weeks, culminating in a game happening on the last week of camp.

The League is called The AZ Premier Flag Football.

The cost to participate is $25 and each player will get a t-shirt, flags and ball. (If any player needs financial assistance to pay this fee, please email angie@sharingds.org.)

Practice will be on Friday nights at 6pm at the Red Mountain Soccer Complex in Northeast Mesa. (Exact practice times subject to change).

To learn more or sign up a player, contact Lynn Ferron 480-440-1285, ferrons1@yahoo.com.

In addition: please contact Lynn if you are interested in coaching and/or volunteering to work with the players on drills.

This will be a terrific opportunity for people and families who love sports and people with Down syndrome.

Touchdown!

Our July newsletter was emailed to our Proud Paren

Our July newsletter was emailed to our Proud Parents today.
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Be sure to check it out, in English and Spanish versions.

To receive our newsletter and join our mailing list, email jennie@sharingds.org.

Looking for a fun way to beat the Arizona summer h

Looking for a fun way to beat the Arizona summer heat?
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Then visit our friends at @fatcatsgilbert @fatcats_mesa and their newest location @fatcatsqueencreek - these fun centers are family friendly and offer a luxury, first-run movie theater with all reclining seats, 20 lanes of bowling, a miniature glow-in-the-dark golf course and a huge arcade with over 50 games!
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Have dinner or lunch there, too, and make sure you check out their special movie rates on Tuesdays.
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Pictured are some of the staff from Fat Cats Gilbert visiting us at the Sharing office recently.
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#fatcatsgilbert #fatcatsmesa #fatcatsqueencreek #familyfuncenterbound #beattheheatofsummer☀️🌴

We are so grateful for being selected as a grant r

We are so grateful for being selected as a grant recipient this year from the wonderful @scottsdale2030 Club.
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The funds given will help us to provide services and support to individuals with Down syndrome and their families in Arizona from birth to adulthood.

We are bigs fans of @dbook and the @suns! . . #r

We are bigs fans of @dbook and the @suns!

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#rallythevalley #phoenixsunsbasketball @sunscommunity #nbaplayoffs2021

Our June 2021 newsletter was emailed to our Sharin

Our June 2021 newsletter was emailed to our Sharing families today in English and Spanish.
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To sign up for our newsletters, email jennie@sharingds.org.
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You can view our newsletter on our Facebook and Twitter channels.
Have a safe and wonderful summer, everyone.⛱⛱

A free, fun virtual magic camp is being held this

A free, fun virtual magic camp is being held this summer - contact the @uabartsinmed at 205-996-1488 or email laurenme@uab.edu.
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#virtualsummercamp #summercamp2021 #magiccamp #magiccamps #onlinecampsforkids #onlinecampsforteens #onlinecamps2021

Tonight’s the night! 👏👏 We are pleased to

Tonight’s the night!
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We are pleased to invite you to tonight’s finale of our Spring 2021 online parent forum series.
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Dr. David Bank with @spgvirtualcare will speak tonight on home and virtual health care and how this could really benefit our families.
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It’s not too late to register- email jennie@sharingds.org.
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If you forget to register but want to join our zoom call at 7 pm, use this to join: Meting ID: 822 0199 8087; the passcode is 287384
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We are hosting our last online parent forum for Sp

We are hosting our last online parent forum for Spring 2021 tomorrow night (May 13) from 7-8:15 pm.
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We will be spotlighting the work of SPG Virtual Care - a group of physicians and medical professionals who bring healthcare to families who may be better served at home or virtually.
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We will host Dr. David Bank who is the leader of Pediatric Healthcare with SPG Virtual Care.
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Dr. Bank will present information and then have a time for participants to ask questions.

To register for this event, email jennie@sharingds.org.

Photo courtesy of SPG-Virtual Care.

@spgvirtualcare #homehealthcareproviders #homehealthagency #homehealthcareservice #homehealthcareconsultants

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