SDSA and its future…
The Board will be working on succession plans and strengthening the SDSA business model. It was recently announced that Angie Haddad will work with Gina Johnson as the new Assistant Executive Director of SDSA. Gina will continue to lead the organization, and train Angie on business operations. (Angie is pictured with her son, Jordan, at the 2020 Sharing Down Syndrome Drive Thru Walk Parade).
In addition, many policies and procedures will be updated and implemented, allowing for greater accountability and innovation to a changing workplace.
Even with all the changes, our mission remains the same: to educate and empower, but especially give hope to individuals who have Down syndrome so they may grow up to become independent self advocates.
Reminder:
Flag Football Camp Starting Sept. 24
Be sure to sign up your child (ages 6-14) for a Flag Football Camp planned to start this September 24. The camp will run for 8 weeks, culminating in a game happening on the last week of camp.
To learn more or sign up a player, contact Lynn Ferron at ferrons1@yahoo.com. Please contact Lynn if you are interested in coaching and/or volunteering to work with the players on drills.
From Gina Johnson, Our Executive Director
I want to give a shout out to Ron Anderson, owner of Whole Grain Bread Company! (This business is located at 1244 S Val Vista Dr, Mesa, AZ 85204; open M0n-Sat 6am-6pm).
Many of you know our dear friend, Parker Bradshaw, has worked there for many years selling his delicious Parker’s Pretzels.
Well – now they’re really trying to torture me – by making my mouth water with their newest creation, Parker’s Pastries. They are filled with delicious fruit, but my favorite is the chocolate pastry. They are addictive to say the least – a true confession of a chocoholic. ❤️
At a recent board meeting to welcome new board members, we realized it was the birthday for dear ASU professor, Dr. Shannon Ringenbach, so of course we had to celebrate with these wonderful creations.
Let us know of the entrepreneurs in your life with DS. Send stories to angie@sharingds.org.
Love,
David’s Mom
(aka Gina Johnson)
Global Webinar Series Fall 2021 – Alzheimer’s Disease in Down Syndrome Understanding the Connection
Tuesday, September 14, 2021
12pm – 1pm MDT
(Info and photos courtesy of Global DS Foundation) Join GLOBAL and Dr. Michael Rafii, Medical Director of the Alzheimer’s Therapeutic Research Institute (ATRI) and Associate Professor of Neurology at the Keck School of Medicine of the University of Southern California for a webinar on Alzheimer’s Disease in Down syndrome Sept. 14.
In this presentation, our latest understanding of Alzheimer’s disease in Down syndrome will be reviewed. The signs and symptoms will be reviewed, as well as current research approaches to diagnosing, treating and preventing dementia. Finally, there will be a discussion of what self-advocates and families do to help prevent Alzheimer’s disease through the lifespan.
Dr. Rafii’s research focuses on the design and conduct of clinical trials for Alzheimer’s disease including a genetic form of Alzheimer’s disease that occurs in people with Down syndrome.
Pool Party Fun at Gila Bend SDSA Chapter
“I wanted to share the success of our Sharing Down Syndrome pool party. It was August 7th at the local community pool.
We had around (10) individuals with Down syndrome attend, 65 people total. We swam and ate pizza. I think everyone had a great time! It’s been awhile since we’ve done any activities for Sharing Down syndrome. Thanks for all you do for our community!”
-Roxanne Benson
Reminders on Chapter Events:
  1. For any chapters meeting, please take Covid-19 precautions into planning.
  2. Expenses may be reimbursed with prior written consent from the Executive Director of SDSA before the event. Email gina@sharingds.org and jennie@sharingds.org with your event plans and estimated expenses.
  3. Expenses are not to exceed the agreed upon budgeted amounts.