Reminder:
Flag Football Camp Starting this Fall
Be sure to sign up your child (ages 6-14) for a Flag Football Camp planned to start this September 24. The camp will run for 8 weeks, culminating in a game happening on the last week of camp.
The League is called The AZ Premier Flag Football.
The cost to participate is $25 and each player will get a t-shirt, flags and ball. (If any player needs financial assistance to pay this fee, please email angie@sharingds.org.)
Practice will be on Friday nights at 6pm at the Red Mountain Soccer Complex in Northeast Mesa. (Exact practice times subject to change).
To learn more or sign up a player, contact Lynn at ferrons1@yahoo.com.
In addition: please contact Lynn if you are interested in coaching and/or volunteering to work with the players on drills.
Ballet Arizona Offers Adaptive Dance Classes
(Photo and info from their website): The School of Ballet Arizona is proud to offer a program based on the successful Adaptive Dance Program of Boston Ballet for children ages 5 – 14.
The Adaptive Dance Program at Ballet Arizona is designed to create a class environment that is sensitive to the needs of students with Down syndrome, while nurturing their self-expression and developing their movement, social, and rhythmic skills. Please call or email The School of Ballet Arizona for more information at 602.381.0188 or school@balletaz.org.
Looking for other adaptive enrichment programs for your children?
Then look into some of these programs happening across the valley. Many local Parks & Recreation Departments are offering adaptive recreation and therapeutic programs: Click on the city below to be directed to their website. (Don’t see your city listed? Then go to your city’s parks and recreation website and search for adaptive recreation).
Amazing News from The Global Down Syndrome Foundation
For Fiscal Year 2021, there will be a $15 MILLION INCREASE for the National Institutes of Health (NIH) for Down syndrome research!
The funds will help support scientists to pursue areas such as (1) health disparities for African Americans with Down syndrome, (2) mosaic Down syndrome, and those with (3) the dual diagnosis of Down syndrome and autism.
To learn more, click on this link:
News from The IRS and the National Down Syndrome Congress
Child Tax Credit Payments enhanced through the American Rescue Plan started July 15, which will help many families in the Down syndrome community who claim children under the age of 17 as dependents.
Eligible families will start getting automatic Child Tax Credit payments of up to $300 per child in their accounts, which will be issued monthly by the Internal Revenue Service (IRS) through the end of the year. You can check your eligibility and get more information here:
Going back to school and need an advocate?
If your child’s going back to school does not go exactly as planned, you may want to consider an educational advocate. Our organization recommends Susan Marks of Susan Marks and Associates.
To learn more about this organization, be sure to visit her website: https://susanmarks-advocates.com
Down syndrome advocates discuss life experiences with students from the Mayo Clinic
On July 21, advocates for Down syndrome came to our Sharing office in Mesa and visited students via Zoom at the Mayo Clinic. The goal of the visit was to discuss life experiences of having a child with Down syndrome and the obstacles that the diagnosis may bring. Both parents and self advocates spoke to the medical students. Here is what one student wrote about the zoom meeting:
“I’m a Mayo medical student – thank you so much to everyone involved for sharing their experiences with us today! I was struck by how happy Parker and Eric seemed throughout the entire Zoom call, and I always saw them smiling. It must have been contagious because I caught myself smiling as well.
I really admired all three mothers, and your positive, forward-facing attitudes. I will definitely remember ‘Welcome to Holland.’ I noted there was quite a difference between Eric and Parker’s mom’s stories, and I think it’s a very promising look into how far the world has come in just the past several decades.”
From Gina Johnson, Our Executive Director:
A very special “thank you” to Eric Gardner, a self-advocate who works for me. He and his dear mom (Barb) often go on new parent visits with me.
When parents meet Eric, they can’t help but fall in love. Recently, Eric and Barb met a dear social worker we love named, Heidi Solak. Heidi works in the NICU of Banner Desert Hospital.
I know our Sharing families are blessed to have all three of these amazing people in their lives. So am I!
Love,
David’s Mom (aka Gina Johnson)