From our July 2021 newsletter

Sharing Down Syndrome AZ receives $10,000 grant from the Scottsdale 20/30 Club
We are so grateful for being selected as a grant recipient this year from the wonderful Scottsdale 20-30 Club.
The funds given will help us to provide services and support to individuals with Down syndrome and their families in Arizona from birth to adulthood in the following ways:
(1) immediate support services to new parents; (2) collaboration with community organizations dedicated to the empowerment, inclusion and care of people with Down syndrome (3) annual events across the lifespan for people with Down syndrome and their families.
About the Scottsdale 20/30 Club: (from their website)
Scottsdale Active 20/30 Club was chartered in 1987 as an organization for young men to give back to their community by raising money to support children’s charities. The philanthropic and social club is comprised of up to 50 young men under the age of 40 and has raised millions of dollars for local Arizona non-profit organizations through its fundraising events.
Scottsdale 20/30 Club differs from other service organizations in that it not only raises money for children’s charities, but also encourages interaction with the children the club supports. This active participation embodies the active 20/30 slogan, ‘One never stands so tall as when kneeling to help a child.’

Looking to beat the heat and have some family fun this summer?
Then visit our friends at Fat Cats Gilbert, FatCats Mesa and their newest location FatCats Queen Creek – these fun centers are family friendly and offer a luxury, first-run movie theater with all reclining seats, 20 lanes of bowling, a miniature glow-in-the-dark golf course and a huge arcade with over 50 games!
Have dinner or lunch there, too, and make sure you check out their special movie rates on Tuesdays.

Sleep Study – Participants Needed; Earn $140 each visit
The University of Arizona(Tucson) is seeking participants for a clinical trial of medications to treat obstructive sleep apnea in children age 6-17 with Down syndrome.
The clinical trial will involve completing a total of 3 sleep studies over 3 months and taking study medications for a total of 2 months.
Children may be eligible if they have a diagnosis of Down syndrome (trisomy 21, but not translocation or mosaicism) and do not have any of the following:
-currently using and unable to discontinue PAP therapy
-premature birth < 37 weeks estimated gestational age
-seizure disorder requiring current use of medications
-untreated or inadequately treated hypothyroidism
-history of current, untreated depression
-history of liver disease
The study reimburses $140 for each visit, and visits are tied to a sleep study, so participants wouldn’t need to worry about a hotel as they would be staying in the sleep lab.
Email slopez1@arizona.edu for more information.
Flag Football Camp Starting this Fall
Are you ready for some football?!
If so, be sure to sign up your child (ages 6-14) for a Flag Football Camp planned to start this September 24. The camp will run for 8 weeks, culminating in a game happening on the last week of camp.
The League is called The AZ Premier Flag Football.
The cost to participate is $25 and each player will get a t-shirt, flags and ball. (If any player needs financial assistance to pay this fee, please email angie@sharingds.org.)
Practice will be on Friday nights at 6pm at the Red Mountain Soccer Complex in Northeast Mesa. (Exact practice times subject to change).
To learn more or sign up a player, contact Lynn at ferrons1@yahoo.com.
In addition: please contact Lynn if you are interested in coaching and/or volunteering to work with the players on drills.
This will be a terrific opportunity for people and families who love sports and people with Down syndrome.
Touchdown!
Quote of the Month for July:
“Someday – when the pages of my life end – I know that you’ll be one of the most beautiful chapters.”
-Jen Salls
Enjoy your 4th of July, everyone!
We wish all of our families a safe and happy Independence Day. The Sharing office will be closed on July 5 & 6 in honor of the holiday.
Colorful Fireworks

 

Fireworks are a big part of the July 4 celebration. Please keep in mind, many of our children may have sensory issues and fireworks may cause anxiety and even fear.
Here’s an article from the Brain Balance Achievement Centers website on tips to help your loved ones have a low stress evening:
  • Reduce Sensory Input: If you choose to attend the fireworks display with your sensory-sensitive child, you may consider bringing ear plugs or headphones to help reduce the volume of the sounds that accompany the big show. You may also consider picking a location that’s not too crowded.
  • Set Expectations: Let your child know how long the parade, party or fireworks will last, so they feel more in control. It’s also important to provide them with a choice to opt-out if it becomes too much.
  • Pick and Choose: The Fourth of July holiday offers many activities that can be stressful for a sensory sensitive child. You may wish to limit the day to include one or two of your favorites.
Also – remember that many of our beloved pets may experience anxiety around fireworks, too.
The Starfish Story
Here’s a short story that seems appropriate for this time of the year, when so many of us will be visiting beaches. Think about this story if you should happen to come across a starfish; and thank you for helping the people in your life with Down syndrome – you make a difference to them.

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